Meet Ally
Ally has Ehlers-Danlos Syndrome, Hypermobile type, and suffers from related conditions such as Postural Orthostatic Tachycardia Syndrome (POTS), chronic pain, spontaneous intracranial hypotension (SIH), and several abdominal compression syndromes. During her childhood, many pediatric specialists and providers dismissed her symptoms as being psychosomatic. In this video, Ally shares her journey and emphasizes the crucial role knowledgeable physicians played in her healing process.
Cole's Story
True Story: Cole has POTS (Postural Tachycardia Syndrome) and struggles to find help, becoming disabled by it. Pediatric providers kept telling him it was all in his head. But once he found knowledgeable care providers who knew what to do, he found healing.
